The Sophie’s Voice Foundation is a non-profit charity that supports family outreach programs, prenatal education, and surgical studies for children and adults with Spina bifida. Actors Boris Kodjoe and Nicole Ari Parker founded the Sophie’s Voice Foundation in 2008 in honor of their daughter Sophia who was diagnosed with the disease at birth. Since then, they have consulted with various specialists and have gotten educated about Spina bifida to properly address their daughter’s needs and help others who also suffer from this ailment.
Mission and Background
“Protecting Their Life Before It Begins”
The SOPHIE’S VOICE FOUNDATION is a charitable organization supporting family outreach programs, prenatal education and surgical studies for children and adults with Spina Bifida.
The SOPHIE’S VOICE FOUNDATION was founded in 2008 by actors Boris Kodjoe and Nicole Ari Parker in honor of their daughter Sophie who was diagnosed with Spina Bifida at birth. The news hit hard, but through consulting with various specialists and by educating themselves they found a way to address their daughter’s needs and provide her with the best care and treatment available today.
But along the way they encountered families who couldn’t afford to dedicate time and medical resources to their loved ones and were stranded in a place of confusion and despair.
Nicole and Boris were determined to help provide medical, physical, and emotional support to Spina Bifida Families everywhere. They teamed up with pediatric physicians from Atlanta to assist families in finding treatment options and care, and to help fund research and surgical studies.
Currently, the SOPHIE’S VOICE FOUNDATION is planning fundraisers across the nation to help finance the Xiao Procedure, a nerve rerouting procedure that could change the lives of Spina Bifida Families everywhere.
Nicole and Boris are extremely excited and motivated to be a voice for those unheard, and to provide education about prevention and a possible cure for this most preventable birth defect.
To learn more about this foundation or to donate money, you can check out http://www.sophiesvoicefoundation.org.
Source: Sophies Voice Foundation
